Don't take the doctors word as gospel. Lots of our little ones have proved them wrong
Remember they are still your wonderful little person. The syndrome does not define them
Lean on people, they want to help
Try not to Google
Keep Calm and Carry On
You will cope even though it doesn't feel like it right now
Read the After Diagnosis leaflet from Unique
You can find it here
Come and find our facebook page and chat to other families.
Read the 1p36 information
leaflet from Unique.
Take your time
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