Unique are a UK based charity that support families effected by any rare chromosome disorder
1p36 DSA are a family run support group based in the US. They work to raise awareness of 1p36 del in the US and offer support to families from all over the world.
Registered UK charity enhancing the family lives of those affected by rare genetic conditions through provision of holidays, day trips and respite breaks.
The 1p36 Family Trust - Privacy Notice
Rebecca Rolleston - Chairman
Sylvia Edington - Secretary
Gareth Twynam - Treasurer
Mary Daniels - Grants Manager
Gemma Webb - Fundraiser