1p36 Family Trust Conference

23rd-25th July 2021

In Summer 2021, we are planning the biggest conference in the UK to date. We have specialists and professionals coming from all over the UK and even the US. They specialise in different aspects of 1p36 deletion syndrome. The full itinerary will be released closer to the event.

We will be having a family party, mum and dad's nights out, and time for the siblings to get together.

This event is for families, caregivers, support staff, and of course all of our amazing 1p36 Deletion Syndrome children and adults.

Please use the link below to register your place!


Scholarship Application for 2021

1p36 Family Trust is providing a scholarship to attend the 2021 conference in London, 23rd-25th July 2021. Each scholarship includes 2 nights at DoubleTree Hilton Dartford Bridge and free conference registration for 2 adults and the individual with 1p36 Deletion syndrome.

Eligibility Requirements:

  • Must be your first time attending a 1p36 Family Trust conference

  • Must have a child or personally be affected with 1p36 Deletion Syndrome.

  • Applicant would not be able to attend the conference without financial support (no income verification required).

  • After attending , applicant must be willing to write a small/brief article for the 1p36 Family Trust website about their experience.

  • Only families who live in England, Scotland, Wales or Northern Ireland can apply.

All applications must be received by 30th April 2021. 

Thanks for submitting!