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1p36 Family Trust Conference 2023

26th - 27th August 2023

Saturday 26th August 2023:


Conference sessions at the Stourport Manor Hotel.


Family party in the evening.

Sunday 27th August 2033:


Family fun day at West Midlands Safari Park.


Family BBQ in the evening at Stourport Manor Hotel.

The event will start Saturday morning, so should you want to book your room for the night before you are more than welcome to do so.


The hotel is - Stourport Manor Hotel

35 Hartlebury Road, Stourport-on-Severn, DY13 9JA

All families coming to the event must contact the hotel and book their rooms, you will not need to pay anything until you check into the hotel, however they will take card details at the time of booking.

Hotel rooms are based on a first come first serve basis.

We have reserved a number of rooms based on the families that said they could attend, if you want to attend by haven’t confirmed please can you contact me after you’ve booked your room so I can ensure you are included in the event numbers.

If you require an accessible room or interconnected rooms please ensure you book early.

Please call 01299 289955 and quote “1p36 Family Trust Event” to ensure you are allocated the reduced room rate.

The room rates per night including breakfast are as follows

* £85 (based on 2 people sharing)

* £90 (based on 3 people sharing)

* £95 (based on 4 people sharing)

* £135 (2 interconnecting rooms accommodating up to 7 people)

More information about activities throughout the event will be given soon. We’re currently working hard to make sure we all have a fabulous time together!

This event is for families, caregivers, support staff, and of course all of our amazing 1p36 Deletion Syndrome children and adults.

Please use the link below to register your place!


Scholarship Application for 2023

1p36 Family Trust is providing a scholarship to attend the 2023 conference in Stourport-on-Severn on 26th - 27th August 2023 . Each scholarship includes free conference registration for 2 adults and the individual with 1p36 Deletion syndrome.


Eligibility Requirements:

  • Must have a child or personally be affected with 1p36 Deletion Syndrome.

  • Applicant would not be able to attend the conference without financial support (no income verification required).

  • After attending , applicant must be willing to write a small/brief article for the 1p36 Family Trust website about their experience.

  • Only families who live in England, Scotland, Wales or Northern Ireland can apply.

All applications must be received by 30th June 2023. 

Thanks for submitting!

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