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Upcoming Fundraising Events

5K Fun Run  

Postponed to 2021

We would love you to join us and help us raise as much money for the conference as we can!

Upcoming Fundraising Events

Charity Ball

Postponed due to Covid-19

Redlibbets Golf Club, Kent, TN15 7HT

Start the night with a welcome drink, followed by a 3 course dinner, then teas or coffees to finish.

The night will include our famous Auction of Promises, a raffle and lastly a disco to party the night away!

Dress code: Dress to impress

Doors Open at 6.30pm for 7.30pm start!

Purchase tickets by clicking the link below or alternatively you can buy tickets directly - please email 1p36familytrust@gmail.com for details.


1p36 Family Trust Conference

In Summer 2021, we are planning the biggest conference to date. We have specialists and professionals coming from all over the UK and even the US. They specialise in different aspects of 1p36 deletion syndrome. The full itinerary will be released closer to the event.

We will be having a family party, mum and dad's nights out, and time for the siblings to get together.

This event is for families, caregivers, support staff, and of course all of our amazing 1p36 Deletion Syndrome children and adults.

Please use the link below to register your place!


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